Monday, October 31, 2011

Monday October 31st, 2011

Happy Halloween!!

Jenn is doing quite well again today and Dr Miller is now back from his seminar/vacation.  We originally thought that Jenn would be getting another bone marrow biopsy tomorrow, but Dr Miller is thinking he might hold off a few days.  I asked why we would do that (because clearly we want to know that this is in remission already) and Dr Miller's response was that he is "thinking about it"... this isn't bad news at all.  He mentioned that if he felt likeJenn was in trouble that he would administer the biopsy immediately. 

We asked about the bone marrow match test that was performed on Tucker (Jenns brother for those not in the know) and Dr Miller is going to see if those came back yet.  Even if Tucker is a match, they would let Jenn go home first to recover a bit before performing a bone marrow transplant.

All in all, Jenn is not having many side affects from the chemo and tomorrow is supposed to be the worst day after her initial treatment.  Jenn might need a blood transfusion tomorrow for her hemoglobin counts, but other than that she is just trucking along.

We got warned today that we needed to "hide" the coffee pot that Jaidee sent down, but we won't be taking it home... It just has to hide out till we need to brew more Horton's. YUM!

Lots of Love from Room 4912!!

Sunday, October 30, 2011

Sunday October 30th, 2011

Jenn had another good day yesterday and really continues to impress everyone.  There was an unexpected platelet transfusion because the nursing staff felt it might be necessary in order to prevent any internal bleeding.  This isn't overly shocking news though as her team of doctors have been warning us that platelets will be given quite often through this journey.

My dad and Dave Hino are now on their way back to Buffalo through all of the snowy territory that received that nasty Nor'easter yesterday.  I would like to note that Buffalo didn't receive any snow for once; it's about time that the rest of the northeast catches up on those snowfall totals... Meg Glenn gets serious kudos from myself as she is one fantastic cook.  Meg sent down two amazing dishes and the Turkey Taco Lasagna was devoured last night by us boys. Meg you might want to start your own restaurant as that dish was awesome and I cannot wait to heat up the other dish today for the football games!! :)

I will be off this week from work staying here at the hospital, so for anyone local that wants to visit, this will be the least busy week in the hospital room.  So please feel free to stop by and wish Jenn well.

Jenn is still off of the IV's today, the only time she needs to be hooked up is when receiving her antibiotics that take a couple of hours and then she is free of those lines the rest of the day.

God Bless Room 4912!!

Saturday, October 29, 2011

Saturday October 29th, 2011

Jenn is completely unhooked from her IV's today!!  :)

This is only temporary, but is a significant relief to Jenn and has made her extremely happy.  They will only hook the IV back up for Jenn's antibiotics and transfusions when necessary.  Jenn does have a rash that won't seem to go away on her neck and chest.  Fortunately the rash isn't spreading beyond that and isn't too terrible, but more so just annoying.

The Boys (Tucker, Scott, Chuck, Dave Hino and I) went out to watch the World Series last night. It was also the last night that Scott and Tucker were here; so we thoroughly enjoyed ourselves and made a great evening out of it.  It was great to see Scott and Tucker again, they are so loving and caring; it made this past week completely enjoyable.

Jenn is looking forward to the return of Dr. Miller next week as she will be getting her biopsy done and that is the next hurdle we are looking forward to overcoming.  As soon as the results come back, I will update the blog immediately and obviously call everyone in the immediate family.

Thanks for all of the gifts and cards, these absolutely make Jenn's day and she wants to thank everyone for all of the cards and gifts received to date.  Jenn wants to thank Carole for the T-shirt that has Rosie the Riveter and says "F*ck Cancer" as the caption. Jenn would also like to thank Tommy, Lesley and Lindsey for the very cool Sabres Snuggie blanket!!

Much Love from Room 4912!!

Friday, October 28, 2011

Friday October 28th, 2011

Jenn got some good news today from the doctors.  After yesterdays transfusions her platelet count is up to 26 and her hemoglobin was at 10.  These are great numbers as the platelet count is well over the 15 that she needs to be at and the hemoglobin will slowly fall, but 10 is the highest Jenn has been at since she came into the hospital.

Jenn is in great spirits and Tucker, Scott and my great friend Dave Hino are all here today visiting this morning.  We left my dad at the house to clean-up after watching that crazy World Series game last night.

The Sabres won last night 4-2, so that always brings a smile to Jenn's face.  She is currently reading the last book in the Stieg Larsson trilogy called "The Girl Who Kicked the Hornets Nest" and has already watched the first two movies as well.

I am so happy that everyone has been sending goodies and gifts, those really make Jenn happy.  Much love to Jenn's great friend Jaidee for providing Timmy Ho's (Tim Horton's for everyone outside of the northeast) and a bunch of other goodies.  Meg Glenn also deserves big hugs and kisses for sending down some food that I can only describe as scrumptious looking, we will be digging into those dishes over the weekend!!  :)

Also Jenn wants to personally thank Monica Townes for the warm socks, Jenn absolutely loves them.

Much Love from Room 4912!!

Thursday, October 27, 2011

Thursday October 27th, 2011

Jenn will be receiving a transfusion today of blood and platelets, which will definitely make her feel better.  Just to clarify, Jenn feels good, but once her Hemoglobin count drops below 8 she has to receive a blood transfusion.  Jenn also needs platelets whenever the counts drop below 15 and her count is currently at 9. Again, nothing alarming as the doctors previously told us that transfusions of both blood and platelets are to be expected almost every other day.

My sister and David Vogel both have orange bracelets to help support Leukemia.  They are available for a minimum donation of $2 and from what I understand they already are almost sold out, but they ordered more so they will have plenty.  You can reach my sister Jennifer Seyfang at (716-835-2886 or seyfangj@hotmail.com) and David Vogel at (716-870-2711 or david.vogel@ingrammicro.com).

Jenn is in great spirits and continues to amaze me and her family.  We knew she was strong, but she is Wonder Woman strong!!

God Bless and Lots of Love from Room 4912!!

Wednesday, October 26, 2011

Wednesday October 26th, 2011

Jenn had a good night and slept fairly well.  She was told this morning that as long as the bone marrow biopsy comes back negative and her white blood cell count increases that they will look to release Jenn in two weeks.

Jenn got taken off of a few of the IV antibiotics and now receives those orally, which is much more effective for her and her body.  We try to walk a good bit everyday around the hospital floor, but Jenn has to wear a mask and watch out for infections from other people whom might be sick.  I cannot imagine how terribly bored Jenn must be, she reads a lot and always looks forward to getting a shower.  The simple things at this point as the most rewarding for Jenn. 

Thanks to everyone who has sent cards or care packages.  Jenn received a bunch of mail yesterday and that just made her sooo happy!!

We are going to take a walk now...

Much Love from Room 4912!!

P.S. - On a personal note, I want to know if Ville Leino plans on donating his salary to the Leukemia Society for his lack of production so far with the Sabres.  We clearly overpaid for someone who was never drafted and only scored 19 goals last year... Love Pegula, but this pay first and ask questions later type of mentality is going to make us the next New York Rangers.  Money can't buy synergy and paying 26 million to an undrafted 28 year old who has yet to prove himself was just plain foolish. Bench the guy and lets move on!  (Sorry had to get my personal disgust with Leino off of my chest... HAHA!)

Tuesday, October 25, 2011

Tuesday October 25th, 2011

Yesterday was rather good for Jenn, she received her last Chemo IV and is officially off of the Chemo today.

Jenn's brother (Tucker) was tested yesterday to see if he is a possible bone marrow donor.  I don't think the doctors will go this route unless Jenn has a relapse with the Leukemia.  We will find out next week whether or not the Chemo was effective this first go around via the bone marrow biopsy.  Her blood counts have been well so Jenn will not be receiving a transfusion today.  This is great news as she was expected to receive transfusions every other day. WooHoo!

Kim is leaving today to travel back to Denver, but I know Kim will be at ease knowing that her daughter is in great hands and doing exceptionally well during these treatments. It's funny to here about all of the snow that everyone is going back to...  Denver is getting a snow storm this week and Buffalo is getting colder this week... Y'all should move to Charlotte!!  :)

Jenn is starting to experience some mouth soars, which is common with the Chemo treatments.  But they are an inconvenience for sure. Her temp has been much better and she seems to LOVE rice krispies for breakfast lately. All of the nursing staff has been lobbying to get Jenn everyday because they love her attitude and love the fact that she has been low maintenance to date.

Keep sending all of the well wishes and prayers, these keep Jenn strong in this time of weakness.

Lots of Love from Room 4912!!

Monday, October 24, 2011

Monday October 24th, 2011

Today is Jenn's last day of Chemo treatments and we are all really excited for that. Her brother (Tucker) and father (Scott) are arriving today, so Jenn is really excited to see them as well.

Jenn had a great day yesterday, she was up all day and ate quite well.  The mystery gravy that has been served with just about every dish so far was not present and that made Jenn very happy.  She has a taste for pizza today, so they are going to get that for her dinner. 

Tucker will be getting tested this week to see if he is a positive match for a bone marrow donation.  This would be great news if they are a match.  Otherwise the hospital will use their national database for other potential matches.  The bone marrow transplant isn't entirely necessary, but would certainly help increase the chances that this nasty cancer never comes back.  The doctors are probably going to administer a platelet transfusion this week as well as a couple of unit of blood to keep Jenn's system strong.

The Chemo treatments are over, but this is when the real battle begins.  Again, if anyone is even remotely feeling sick we have to ask that you stay home.  Jenn's immune system like I mentioned above is at it's weakest so even the common cold would be a terrible thing for Jennifer to get at this point in her treatments.

Jenn doesn't have a kindle or e-reader, so paperback books are best at this point.

Jenn is very upbeat and truly inspirational, we are just amazed everyday when we arrive and she is already up and chipper... What a trooper!

Lots of Love from Room 4912!!

Sunday, October 23, 2011

Sunday October 23, 2011

Jenn slept pretty well last night; so much so the nurses had a hard time waking her up for her blood draw this morning...  She loves her new haircut and even painted her finger nails last night.  The doctors are now giving Jenn some medicine to make the diarrhea go away, but Jenn says it tastes like chalk and she has to take the medicine orally 4 times a day for the next 14 days.  I offered to get her some Crown Royale to wash it down better, but that went over like a fart in church...

Speaking of church; Kim, Chuck and I attended mass this morning at St Matthews by my house and believe it or not...  I didn't burst into flames upon entering the church.  :)

We all said some prayers for Jenn and I want to thank everyone for adding Jenn to their prayers for the sick at your respective houses of worship.  That is VERY nice of everyone to do and we all know that Jenn needs as many prayers as possible.

Jenn will be here at the Carolinas Medical Center till at least mid November as that great question came up yesterday.

Jenn would like to thank everyone for following the blog and thanks everyone for all of their support.

Much Love from Room 4912 and God Bless!!

Saturday, October 22, 2011

Saturday October 22nd, 2011

Oh happy days!  (This is what Jenn must be singing in her head today)

Jenn had her haircut thanks to Holly Zieziula and her stylist Carmen, they came this morning and gave Jenn a beautiful pixie cut.  We have pics and as soon as I can get them posted on here I will.

Jenn's doctor said she is doing very well except for the GI infection that she has.  But that will just run it's course according to the doctor and be done with.  In the meantime anyone from the nursing staff that enters the room has to put on what I can only refer to as a chemical suit that is banana yellow in color and quite comical.  They all look like mini Stay Puff men from Ghost Busters...

Jenn took a good walk this morning around the floor with me and it was very nice.

The Chemo treatments stop on Monday, so please pray for Jenn to stay strong as the next week or two are when this all starts to get intense.  The hair loss and weakness will start, but that only means that the Chemo is working and killing all of these nasty cells in her body.

We had the Williams visit last night from AAA Collectibles here in Charlotte and we then went out for a few beers to celebrate my B-day.  I actually ran into some parents of a girl that I graduated with from H.S. so that was very cool.  (Ok, back to Jenn's status)

She is really chipper today and is walking all around the room, getting really excited to take a shower here shortly.

Other than that, Jenn would say "I am hanging strong and hate diarrhea" (These are her words, not mine)  :)

Lots of Love from Room 4912!!

Friday, October 21, 2011

Friday October 21st, 2011

Last night was a real test for Jenn... The Chemo is starting to make the nausea intensify and she was up a lot of the night.  She actually is in great spirits again this morning and I can tell you all that one bad night isn't going to bring Jenn down.

Jenn will be receiving a blood transfusion today and that typically perks her up for a while. Her Hemoglobin was a little low and that is typical with Chemo treatments, so this should not be alarming news at all.

Jenn is off one of the Chemo treatments that was slowly injected for 20 minutes per day, so we are almost half-way through the Chemo treatments themselves.  Her Doctor is off for the next week or so and she has a new doctor that is really thorough as well and only wants to see Jennifer comfortable and healthy.  The entire staff is constantly aiming to please and has done an exceptional job to date.

Jenn has been reading the Stieg Larsson trilogy lately and just started the second book titled "The Girl Who Played with Fire", she also got the movie trilogy from her mother, so once she is done finishing the books she can watch the movies.

Jenn couldn't watch the game here last night as we found out the hard way that streaming isn't allowed by the hospital.  She is really excited that they won again last night and was very happy that Miller got the shutout.

On a lighter note, Dr Miller had a great beer conversation with us yesterday and showed us that he really has quite the human side as well.  He is a big fan of the Duck-Rabbit Stout for anyone looking to try a new bold beer. The Pharmacists (Dragos, I love this name!) likes the Great Lakes Winter Ale for those looking for a lighter beer.  It's my B-day today, so my dad, Jenn's mom and I are going to Lebowski's (a Buffalo themed bar here in Charlotte) to celebrate and to have some wings and a beef on weck.

Now that we got the beer lists completed, we would again like to thank everyone for their love and support and keep sending the well wishes as Jenn loves to hear the comments.

Much Love from Room 4912!!

Thursday, October 20, 2011

Thursday October 20th, 2011

Jenn is doing good today and slept quite well last night.  She looks really good today and is just looking forward to getting her hair cut since it will start falling out next week.  The treatments are going well and other than having some consistent nausea and occasional headaches; she really is doing very well!

Jenn wants to go to the Sabres game in November when we travel home for Thanksgiving... I'm telling you, this girl is just strong beyond belief.  She rarely worries about the Leukemia, she just keeps looking forward to having children and making sure that I am ok.

Speaking of losing hair, her brother Tucker had his head shaved last night.  This is huge as Tucker had longer hair and his commitment to making Jenn feel better is amazing.  Jenn's step dad Mike is joining the cause as well in shaving his head; so I will join the crew too this weekend.

Other than that, Jenn just wants to let everyone know how much she appreciates all of the support and many thanks for all of the visitors and stuffed animals. 

Her last comment that she wants posted today is "Go Sabres!!"

Much love and many thanks to everyone!!

Wednesday, October 19, 2011

Wednesday October 19th, 2011

First of all I would like to say thanks to everyone who has reached out to Jennifer and I; the responses have been therapeutic and quite encouraging to say the least. SO MANY THANKS TO EVERYONE!!

Jenn started the Chemo treatments at 3PM yesterday and she will continue these treatments for the next 7 days.  She has been jovial and is definitely keeping her spirits high. She has moments of pain and nausea, but the nursing staff is exceptional and has been providing pain killers and anti-nausea medicine as needed. The Chemo treatment that she is currently receiving is called Cytarabine.  It is a slow drip IV that Jennifer will continue to receive for the first 3 days of this 7 day treatment.  She also gets an injection of Idarubicin each day that is slowly injected for 20 minutes.

The address for the Carolina's Medical Center is:

1000 Blythe Blvd
Room 4912
Charlotte, NC 28203

Please just remember that flowers are not allowed due to the bacteria that the water can carry.

Jenn is still trying to dry out all of the local lakes by drinking two pitchers of water about every two hours... We are starting to wonder if she is going to develop fins and gills soon.  :)

Other than that, she is resting well and her mother and I are staying by her side all day long.

For anyone that is planning on visiting Jenn, the best hours for visiting are noon - 2:30PM and then 4PM - 7PM.

Please continue to send your well wishes and prayers as Jenn reads the comments daily on the blog and really enjoys all of the followers.  She needs to remain strong and you all are providing that strength and support that she so badly needs.

Lots of love from room 4912 and many thanks!

Tuesday, October 18, 2011

Jennifer's Diagnosis

To all of our friends and family,

As many of you are aware at this point, Jennifer was officially diagnosed with Acute Myeloid Leukemia (AML) on October 17th, 2011.  She is at the Carolina's Medical Center in Charlotte, NC.  Jennifer is going to start receiving Chemo treatments today and they will last for 10 days. During this time we ask that anyone who is thinking of sending flowers, please hold-off as the flowers are not allowed. Balloons, cards and stuffed animals are gladly accepted.

For those that are wondering "how did this all come about"? the answer is still undetermined.  But what I can say is that Jennifer is strong and is in great spirits, she clearly is ready to fight this cancer and win.  Jenn will be receiving IV treatments for 7 days of one Chemo drug and then 3 additional days on another Chemo drug.

We were going to transfer Jennifer to Roswell Park Cancer Institute in Buffalo, but found out yesterday that they won't work with our insurance; United Healthcare. This left us a little bummed because of the family and friends that we all have in Buffalo. Once we commited to having the treatment here in Charlotte, I think we realized quickly that we had made the right choice.  Jenn has the top Oncologist taking great care of her and the nursing staff is outstanding!

All Jenn wants is cold water all day, so the nurses are getting used to bringing in pitchers of water almost hourly... :)

She is eating well and is truly inspirational in the way she is preparing for this battle that she is about to endure.

Please limit calls to the hospital as Jenn needs to rest and fight the good fight.  I will continue to update the blog daily for those of you wanting to know what exactly is transpiring.

Please keep Jenn in your thoughts and prayers.