Good morning everyone,
It was a good weekend for Jenn after receiving such bad news late last week. We have remained positive and the entire team of Dr's here at Roswell have assured us that they will do everything possible for us to cure this cancer once and for all.
Jenn had a switch in treatments this weekend as well. She was accepted into a clinical trial of a new drug that will attack the Leukemia and fix the FLT-3 genetic mutation as well. Unfortunately they cannot administer the new drug until Jenn has been off of the last FLT-3 inhibitor they introduced just this past week. So on Friday August 9th Jenn should be receiving this new treatment. In the meantime, the Dr's have Jenn on a very low dosage chemo to keep the Leukemia counts in check so Jenn can wait out the two weeks before the new clinical drug is introduced.
Jenn has been very strong through all of this, her strength increases daily and she even walked 16 laps yesterday around the hospital floor. 16 laps is a half mile and that is a lot of walking for someone who is still receiving chemo daily. Jenn realizes that she has to build-up her strength in order to be accepted into the bone marrow wing, which will be the next move for us once they cure this genetic mutation and get the cancer into remission again.
I really appreciate all of the visitors that have been coming by to keep Jenn busy and to provide their love and support. Even though sometimes Jenn is just too tired to see visitors, she does know that you were there and that provides Jenn with a lot of strength and encouragement. Without you guys, I would have lost my mind sitting here, so thank you all so much!!!
Jenn has been eating better as well. Lately Jenn has only been eating apple sauce and chicken broth. But last night she had chicken noodle soup and this morning Jenn had two eggs and a pancake!!! YOU GO GIRL!
Thanks for all the cards and well wishes, Jenn really loves getting mail and hearing about all the prayer cards she is on and knowing that everyone is pulling for her. We love you all!
Much love from room 5409!!
Monday, July 29, 2013
Friday, July 26, 2013
Friday July 26, 2013
Good afternoon everyone,
I was hoping to have some good news to post today and I do... but first we need to talk about what Jenn and I were informed of just last night. Jenn's Leukemia is back already, even though she tested clean on the bone marrow biopsy just one week ago. This means that the Leukemia has mutated and is already impervious to the chemotherapy. So I know that everyone who is reading this right now is shaking their heads and some of you might even be crying. (I know we were last night when we heard this news)
But let me tell you what this all means for Jenn. This is what is commonly referred to as a "bump in the road" to recovery. Jenn had a few choices for treatment since the cancer is back so quickly. They ranged from stopping the treatments, to high dosage chemo, to a clinical drug that will help fix Jenn's genetic mutation (FLT-3). So Jenn's choice was to go with the clinical drugs that will help fix this mutation in her genes, so that this disease will hopefully never come back. Jenn started the drug last night and so far has been able to keep the pills down and thus that is great news!
So what does this mean as far as Jenn's road to recovery. Well it means a few things, first and foremost this means that Jenn will have to wait for the bone marrow transplant until she takes this clinical drug and it starts to show signs of working and fixing this mutation. It also means that Jenn probably won't be released from the hospital until after the bone marrow transplant or a la a few months from now.
We are hopeful that this clinical drug is going to fix the mutation, but they also may administer a newer clinical drug to combat the Leukemia and to help fix the genetic mutation. After that, if neither work, Jenn will get high dosage chemo as a last resort.
So... now we all need to pray for a speedy recovery and pray for these clinical drugs to work.
We also had some GREAT news today, Jenn has 5 matches for her bone marrow donors!!!! This is AWESOME!!
So now the plan is to take Jenn from the Leukemia wing straight to the bone marrow transplant unit. But in the meantime Jenn needs to keep eating and getting physically stronger as the bone marrow transplant is quite physically draining.
We are taking this all in stride as Jenn has dealt with these "bumps in the road" quite well, so now we just need to get over this one.
Thanks for all of the cards, calls and visitors. We love all of you guys!!
Much love from room 5409!!
I was hoping to have some good news to post today and I do... but first we need to talk about what Jenn and I were informed of just last night. Jenn's Leukemia is back already, even though she tested clean on the bone marrow biopsy just one week ago. This means that the Leukemia has mutated and is already impervious to the chemotherapy. So I know that everyone who is reading this right now is shaking their heads and some of you might even be crying. (I know we were last night when we heard this news)
But let me tell you what this all means for Jenn. This is what is commonly referred to as a "bump in the road" to recovery. Jenn had a few choices for treatment since the cancer is back so quickly. They ranged from stopping the treatments, to high dosage chemo, to a clinical drug that will help fix Jenn's genetic mutation (FLT-3). So Jenn's choice was to go with the clinical drugs that will help fix this mutation in her genes, so that this disease will hopefully never come back. Jenn started the drug last night and so far has been able to keep the pills down and thus that is great news!
So what does this mean as far as Jenn's road to recovery. Well it means a few things, first and foremost this means that Jenn will have to wait for the bone marrow transplant until she takes this clinical drug and it starts to show signs of working and fixing this mutation. It also means that Jenn probably won't be released from the hospital until after the bone marrow transplant or a la a few months from now.
We are hopeful that this clinical drug is going to fix the mutation, but they also may administer a newer clinical drug to combat the Leukemia and to help fix the genetic mutation. After that, if neither work, Jenn will get high dosage chemo as a last resort.
So... now we all need to pray for a speedy recovery and pray for these clinical drugs to work.
We also had some GREAT news today, Jenn has 5 matches for her bone marrow donors!!!! This is AWESOME!!
So now the plan is to take Jenn from the Leukemia wing straight to the bone marrow transplant unit. But in the meantime Jenn needs to keep eating and getting physically stronger as the bone marrow transplant is quite physically draining.
We are taking this all in stride as Jenn has dealt with these "bumps in the road" quite well, so now we just need to get over this one.
Thanks for all of the cards, calls and visitors. We love all of you guys!!
Much love from room 5409!!
Tuesday, July 23, 2013
Tuesday July 23rd, 2013
Good afternoon everyone,
Jenn is having another good day today, she met with the doctors and her Bilirubin is down to 3.6 from over 19+ this past weekend. They need the counts to get down to 1.5 or so, but they are very hopeful that we will achieve that number by this upcoming weekend.
Jenn is starting to eat more regularly as well. Today she had an orange that didn't agree with her, but then she ate some honey nut Cheerios today and those seemed to settle just fine. She also inhaled a cookie that was sent to her from the awesome folks at SYNNEX. We just got done taking our daily walk and Jenn did 6 laps!!! Her previous best was only 4 laps; so 6 is incredible!
We also spoke with one of the doctors about Jenn possibly getting out of here in a week or so, before the bone marrow transplant starts. As long as Jenn reaches .5 white blood cell count, they will release her to my sisters house, so we are all praying for that.
Special thanks to everyone at SYNNEX who sent the care package, Jenn already devoured that cookie and she absolutely loves the stuffed teddy bear. :)
Not too much more to update everyone on, but I will say this is by far the best day Jenn has had to date, so that makes us all VERY HAPPY!
Much love from room 5409!
Jenn is having another good day today, she met with the doctors and her Bilirubin is down to 3.6 from over 19+ this past weekend. They need the counts to get down to 1.5 or so, but they are very hopeful that we will achieve that number by this upcoming weekend.
Jenn is starting to eat more regularly as well. Today she had an orange that didn't agree with her, but then she ate some honey nut Cheerios today and those seemed to settle just fine. She also inhaled a cookie that was sent to her from the awesome folks at SYNNEX. We just got done taking our daily walk and Jenn did 6 laps!!! Her previous best was only 4 laps; so 6 is incredible!
We also spoke with one of the doctors about Jenn possibly getting out of here in a week or so, before the bone marrow transplant starts. As long as Jenn reaches .5 white blood cell count, they will release her to my sisters house, so we are all praying for that.
Special thanks to everyone at SYNNEX who sent the care package, Jenn already devoured that cookie and she absolutely loves the stuffed teddy bear. :)
Not too much more to update everyone on, but I will say this is by far the best day Jenn has had to date, so that makes us all VERY HAPPY!
Much love from room 5409!
Monday, July 22, 2013
Monday July 22nd, 2013
Good afternoon everyone,
Jenn is doing well today, she had to have her central line put back in yesterday as she accidentally snagged it on the hospital bed and slightly ripped it out early Sunday morning. They have since replaced the line last night and all is well with that.
Jenn is having her best day to date. She had a pudding this morning with apple juice and now is eating a bagel and cream cheese. This is the most that Jenn has eaten in 18 days!
We had to shave off all of Jenn's hair today, it was getting nappy and falling out, so it was time to say goodbye to her hair. While Jenn looks beautiful without hair, it made me very sad to shave it off. She hadn't had a full set of hair until most recently and I think the reality set in for me that she won't have a full head of hair again for another year or so.
Other than that, we are just waiting to talk to the team of doctors, but I can also tell you that Jenn's fungal lung infection is starting to look a little better than it did last week. So that is a step in the right direction. Lastly on the health front, Jenn's liver is starting to work properly again, so her Bilirubin levels are down to 5. Now we just need those levels to come down to 1.5 or so and she will be back to normal if you will.
I wanted to take a minute to thank everyone here at Roswell Park. From Dr Wang and Dr Wetzler to the nursing staff that is just simply AMAZING! All of the nurses have been super nice and supportive so far, Jenn literally hasn't had anyone that she doesn't like and the same cannot be said for when we were at Duke previously. The staff here is caring, attentive and quite funny. They all just adore Jenn and the love that she spreads continually. Jenn has been known to ask the nursing staff how their day is going... even while being as sick as she has been most recently. But as we all know, Jenn is always looking out for others and their well being.
Well that is it for today from room 5409, we all just need to pray that Jenn recovers from this first round of treatment quickly. The faster she recovers from this first round, the sooner they will accept her in the bone marrow transplant wing.
Much love from room 5409!!
Jenn is doing well today, she had to have her central line put back in yesterday as she accidentally snagged it on the hospital bed and slightly ripped it out early Sunday morning. They have since replaced the line last night and all is well with that.
Jenn is having her best day to date. She had a pudding this morning with apple juice and now is eating a bagel and cream cheese. This is the most that Jenn has eaten in 18 days!
We had to shave off all of Jenn's hair today, it was getting nappy and falling out, so it was time to say goodbye to her hair. While Jenn looks beautiful without hair, it made me very sad to shave it off. She hadn't had a full set of hair until most recently and I think the reality set in for me that she won't have a full head of hair again for another year or so.
Other than that, we are just waiting to talk to the team of doctors, but I can also tell you that Jenn's fungal lung infection is starting to look a little better than it did last week. So that is a step in the right direction. Lastly on the health front, Jenn's liver is starting to work properly again, so her Bilirubin levels are down to 5. Now we just need those levels to come down to 1.5 or so and she will be back to normal if you will.
I wanted to take a minute to thank everyone here at Roswell Park. From Dr Wang and Dr Wetzler to the nursing staff that is just simply AMAZING! All of the nurses have been super nice and supportive so far, Jenn literally hasn't had anyone that she doesn't like and the same cannot be said for when we were at Duke previously. The staff here is caring, attentive and quite funny. They all just adore Jenn and the love that she spreads continually. Jenn has been known to ask the nursing staff how their day is going... even while being as sick as she has been most recently. But as we all know, Jenn is always looking out for others and their well being.
Well that is it for today from room 5409, we all just need to pray that Jenn recovers from this first round of treatment quickly. The faster she recovers from this first round, the sooner they will accept her in the bone marrow transplant wing.
Much love from room 5409!!
Saturday, July 20, 2013
Saturday July 20th, 2013
Good morning everyone!
GREAT NEWS!!! Jenn had her 14 day bone marrow biopsy a couple of days ago and the results just came in and the news is... GREAT!!!! Her biopsy came back clean, so the Leukemia is in remission and now we just need to get Jenn out and about building up her strength so that we can move into the bone marrow transplant wing by the end of the month.
Today Jenn is feeling a little tired, but she is still committed to getting out of bed to take a walk and even to take a shower today. Jenn is on an inhaler for the fungal lung infection and so far that is the only thing that is still causing her to be nauseous. Her eating restrictions had been clear liquids only, but they removed that restriction yesterday a little bit and she is now allowed to eat full liquids today. Cream of wheat, ice cream and rainbow sherbet are some of the examples of what Jenn can eat now. It certainly beats apple juice, chicken and vegetable broth...
I also wanted to thank everyone who has sent well wishes and cards. Jenn absolutely loves reading the cards and feeling the love that everyone around the country has been sending her way. Jenn is a strong, strong, strong fighter and has been nothing but inspirational through this entire journey. She has humbled me beyond words (and for anyone that knows me, that is next to impossible...) with her courageousness and drive.
I wanted to point out one very important thing for visitors to see Jenn. Please keep in mind that Jenn has NO immune system at this point. So if you plan on visiting, please make certain you are 100% healthy and haven't been sick for over a week. If Jenn were to come into contact with even the common cold right now, she would be in trouble. So please stay at home if you were sick recently or have anyone in your household that is currently sick. Also, please use the hand sanitizer at the doors as you enter so that anything you might have come into contact with is killed with the alcohol before you enter the room. Thanks so much for thinking of Jenn health before coming to visit!!
Much love from room 5409 :)
GREAT NEWS!!! Jenn had her 14 day bone marrow biopsy a couple of days ago and the results just came in and the news is... GREAT!!!! Her biopsy came back clean, so the Leukemia is in remission and now we just need to get Jenn out and about building up her strength so that we can move into the bone marrow transplant wing by the end of the month.
Today Jenn is feeling a little tired, but she is still committed to getting out of bed to take a walk and even to take a shower today. Jenn is on an inhaler for the fungal lung infection and so far that is the only thing that is still causing her to be nauseous. Her eating restrictions had been clear liquids only, but they removed that restriction yesterday a little bit and she is now allowed to eat full liquids today. Cream of wheat, ice cream and rainbow sherbet are some of the examples of what Jenn can eat now. It certainly beats apple juice, chicken and vegetable broth...
I also wanted to thank everyone who has sent well wishes and cards. Jenn absolutely loves reading the cards and feeling the love that everyone around the country has been sending her way. Jenn is a strong, strong, strong fighter and has been nothing but inspirational through this entire journey. She has humbled me beyond words (and for anyone that knows me, that is next to impossible...) with her courageousness and drive.
I wanted to point out one very important thing for visitors to see Jenn. Please keep in mind that Jenn has NO immune system at this point. So if you plan on visiting, please make certain you are 100% healthy and haven't been sick for over a week. If Jenn were to come into contact with even the common cold right now, she would be in trouble. So please stay at home if you were sick recently or have anyone in your household that is currently sick. Also, please use the hand sanitizer at the doors as you enter so that anything you might have come into contact with is killed with the alcohol before you enter the room. Thanks so much for thinking of Jenn health before coming to visit!!
Much love from room 5409 :)
Friday, July 19, 2013
Friday July 19th, 2013
Well family, friends and onlookers,
Not too sure how to say this, so we will just jump right in... Jennifer's Leukemia has come back and we are now at the Roswell Park Cancer Institute in Buffalo, NY.
This all started back on July 2nd when Jenn wasn't feeling too well with abdominal pains and bloating. This continued into July 3rd when our friends Jaidee and Chris Finn were planning on attending the Dave Matthews Band show here in Buffalo with myself, Dave Vogel and Dave Hino. I should have known that this was the cancer coming back, because anyone who knows Jenn, knows that she would NEVER miss a Dave Matthews Show... EVER!
On the morning of July 4th I took Jenn to an Immediate Care facility here in Buffalo and they reviewed her issues and decided to send her to Millard Fillmore Suburban Hospital immediately. upon arriving at Millard the ER Doctors stated that they believe she had an intestinal blockage and that everything was going to be alright... Well that couldn't have been further from the truth. After taking some blood and reviewing the slides, the Dr came into the room and shocked us all at once. I won't ever forget the way he delivered the news. He said "Guys, I have only had to say this once before in my career, so here goes. Your Leukemia is back and is out of control. You need to get to Roswell Park ASAP."
All I kept thinking to myself is this cannot be happening, this is the best woman in the world and you cannot be telling me that her cancer is back... Tell me she has a blockage or the flu, but not cancer again. This poor girl has been through hell and back, but like a Phoenix rising from the ashes, she will get through this. This is just another unfortunate chapter in our lives and in Jenn's journey.
So, this was around 4pm on the 4th of July. They had Duke call me and Dr Horowitz from Duke spoke to me about Jenn's current condition. She had a white blood cell count of 132, which is 10 times what a normal reading should be. Dr Horowitz told me that the bloating was from the white blood cells and that her Kidneys were not functioning at all and that they saw signs in the CT Scan that indicated permanent kidney damage. Dr Horowitz also mentioned that flying Jenn down to Duke was far to risky, so he agreed that going to Roswell was the most effective course of treatment.
Jenn was immediately accepted by Roswell and she was whisked away in an ambulance to where we are today at the Roswell Park Cancer Institute. We were met at Roswell by Dr Wetzler, the head of the Leukemia division at Roswell. He was very nice, but explained that Jenn was in very serious condition and that they needed to get her on an Apheresis machine immediately to filter out as many of the white blood cells as possible. When your white blood cell counts get that high, your blood runs VERY thick and typically will cause major organ damage (brain, heart, kidneys, lungs and liver). Well after receiving that treatment, Jenn's white blood cell count came down to 32 which was amazing!
We found out on July 5th that Jenn would be here at Roswell for 4-6 weeks or so. She was nervous and kept asking me if she was a goner. This had to be the worst conversation we have ever had. How do you explain to your wife that her future is uncertain at this time??? Sooo, we chatted for sometime and I explained how fortunate she is to be at a world class cancer center. We also talked about how blessed we are that the Doctors were all available on the 4th of July and treated her immediately. Then we talked about how strong of a family unit we are and that no matter how high the mountain is, we will climb it and conquer this latest challenge. Jenn was stable with that response and decided that we would fight this and make it through this once and for all.
Without getting into fine details, we have been on a roller coaster ride ever since.
As of today, we know the following.
Jenn will be here for a while, she will need 4-6 weeks to get the Leukemia back into remission and to get stronger before going into the Bone Marrow Transplant Unit here at Roswell. Yes, Jenn will need to go back through the bone marrow transplant yet again. All in, we will probably be here in Buffalo till late November or into December.
Jenn's kidneys are not damaged and none of her major organs suffered any damage at all. But she hasn't eaten since we arrived, so she is on a TPN IV of proteins, etc. Jenn also had her 14 day bone marrow biopsy done yesterday so we are patiently awaiting those results. The fungal lung infection that she previously had at Duke is back, so that is the biggest issue to date. It causes Jenn to breathe heavy at times and induces pneumonia like fluid in the lungs. She also is having issues with her liver as the anti fungal medicines are causing very high levels of Bilirubin.
We are walking 2-3 laps a day to help get Jenn stronger, for her pending bone marrow transplant. Outside of that, Jenn is doing well and we expect to get through this just like we did at Duke. The Dr's have assured us that people sometimes have to go through 3 or 4 bone marrow transplants before the Leukemia stays in remission. So our new motto is that the second time is the charm... We don't want to go through this a 3rd time at all. I will be updating the blog daily from now on and we apologize for the delay, there just has been a lot going on lately.
Lastly, I would like to thank everyone who has donated platelets and blood. Jaidee found out that there is a donor center downstairs at Roswell and the donations can be directed for use by Jenn. This is amazing and most appreciated. So far I know that Jaidee, Christina, my dad and myself have all donated and thank you all so much!!! If you want to donate, please contact the donor center at Roswell (716) 845-8275
Also, special thanks for all the gifts, please note that Jenn cannot receive live plants or flowers, so please hold off on sending flowers, anything else is most appreciated. Thanks to Crystal and Phil Shumaker for the amazing flowers, also thanks to Jason and Shannon Aldrich for their beautiful flowers as well. Thanks to Jaidee, Chris and the entire Schweitzer family for the pillows, aromatherapy, art supplies and various other pick me ups!! Thanks to Scott And Tucker Ochs for Jenn's awesome I-Pad Mini and Les Miserables DVD. Dave Hino gets love for all the gossip mags and Dave Matthews DVDs for Jenn to watch. Thanks to the Vogels for the sweet coloring book and colored pencils, etc. Thanks to everyone for the cards and heart felt messages. Mom and Dad, I couldn't do all of this without you, your love and support has always been appreciated! Kim, thanks for being an awesome mother-in-law, your love and support is always felt and your caring and dedication is second to none. Final thanks to all of my friends (Radloff, Cartonia, Hino, Olsen, Mucica and Szczesek) for everything you have done!
Jenn's address here is:
Jennifer Pyjas
Roswell Park Cancer Institute
Elm and Carlton St. Room 5409 West
Buffalo, NY 14263
Much love from room 5409!!
Not too sure how to say this, so we will just jump right in... Jennifer's Leukemia has come back and we are now at the Roswell Park Cancer Institute in Buffalo, NY.
This all started back on July 2nd when Jenn wasn't feeling too well with abdominal pains and bloating. This continued into July 3rd when our friends Jaidee and Chris Finn were planning on attending the Dave Matthews Band show here in Buffalo with myself, Dave Vogel and Dave Hino. I should have known that this was the cancer coming back, because anyone who knows Jenn, knows that she would NEVER miss a Dave Matthews Show... EVER!
On the morning of July 4th I took Jenn to an Immediate Care facility here in Buffalo and they reviewed her issues and decided to send her to Millard Fillmore Suburban Hospital immediately. upon arriving at Millard the ER Doctors stated that they believe she had an intestinal blockage and that everything was going to be alright... Well that couldn't have been further from the truth. After taking some blood and reviewing the slides, the Dr came into the room and shocked us all at once. I won't ever forget the way he delivered the news. He said "Guys, I have only had to say this once before in my career, so here goes. Your Leukemia is back and is out of control. You need to get to Roswell Park ASAP."
All I kept thinking to myself is this cannot be happening, this is the best woman in the world and you cannot be telling me that her cancer is back... Tell me she has a blockage or the flu, but not cancer again. This poor girl has been through hell and back, but like a Phoenix rising from the ashes, she will get through this. This is just another unfortunate chapter in our lives and in Jenn's journey.
So, this was around 4pm on the 4th of July. They had Duke call me and Dr Horowitz from Duke spoke to me about Jenn's current condition. She had a white blood cell count of 132, which is 10 times what a normal reading should be. Dr Horowitz told me that the bloating was from the white blood cells and that her Kidneys were not functioning at all and that they saw signs in the CT Scan that indicated permanent kidney damage. Dr Horowitz also mentioned that flying Jenn down to Duke was far to risky, so he agreed that going to Roswell was the most effective course of treatment.
Jenn was immediately accepted by Roswell and she was whisked away in an ambulance to where we are today at the Roswell Park Cancer Institute. We were met at Roswell by Dr Wetzler, the head of the Leukemia division at Roswell. He was very nice, but explained that Jenn was in very serious condition and that they needed to get her on an Apheresis machine immediately to filter out as many of the white blood cells as possible. When your white blood cell counts get that high, your blood runs VERY thick and typically will cause major organ damage (brain, heart, kidneys, lungs and liver). Well after receiving that treatment, Jenn's white blood cell count came down to 32 which was amazing!
We found out on July 5th that Jenn would be here at Roswell for 4-6 weeks or so. She was nervous and kept asking me if she was a goner. This had to be the worst conversation we have ever had. How do you explain to your wife that her future is uncertain at this time??? Sooo, we chatted for sometime and I explained how fortunate she is to be at a world class cancer center. We also talked about how blessed we are that the Doctors were all available on the 4th of July and treated her immediately. Then we talked about how strong of a family unit we are and that no matter how high the mountain is, we will climb it and conquer this latest challenge. Jenn was stable with that response and decided that we would fight this and make it through this once and for all.
Without getting into fine details, we have been on a roller coaster ride ever since.
As of today, we know the following.
Jenn will be here for a while, she will need 4-6 weeks to get the Leukemia back into remission and to get stronger before going into the Bone Marrow Transplant Unit here at Roswell. Yes, Jenn will need to go back through the bone marrow transplant yet again. All in, we will probably be here in Buffalo till late November or into December.
Jenn's kidneys are not damaged and none of her major organs suffered any damage at all. But she hasn't eaten since we arrived, so she is on a TPN IV of proteins, etc. Jenn also had her 14 day bone marrow biopsy done yesterday so we are patiently awaiting those results. The fungal lung infection that she previously had at Duke is back, so that is the biggest issue to date. It causes Jenn to breathe heavy at times and induces pneumonia like fluid in the lungs. She also is having issues with her liver as the anti fungal medicines are causing very high levels of Bilirubin.
We are walking 2-3 laps a day to help get Jenn stronger, for her pending bone marrow transplant. Outside of that, Jenn is doing well and we expect to get through this just like we did at Duke. The Dr's have assured us that people sometimes have to go through 3 or 4 bone marrow transplants before the Leukemia stays in remission. So our new motto is that the second time is the charm... We don't want to go through this a 3rd time at all. I will be updating the blog daily from now on and we apologize for the delay, there just has been a lot going on lately.
Lastly, I would like to thank everyone who has donated platelets and blood. Jaidee found out that there is a donor center downstairs at Roswell and the donations can be directed for use by Jenn. This is amazing and most appreciated. So far I know that Jaidee, Christina, my dad and myself have all donated and thank you all so much!!! If you want to donate, please contact the donor center at Roswell (716) 845-8275
Also, special thanks for all the gifts, please note that Jenn cannot receive live plants or flowers, so please hold off on sending flowers, anything else is most appreciated. Thanks to Crystal and Phil Shumaker for the amazing flowers, also thanks to Jason and Shannon Aldrich for their beautiful flowers as well. Thanks to Jaidee, Chris and the entire Schweitzer family for the pillows, aromatherapy, art supplies and various other pick me ups!! Thanks to Scott And Tucker Ochs for Jenn's awesome I-Pad Mini and Les Miserables DVD. Dave Hino gets love for all the gossip mags and Dave Matthews DVDs for Jenn to watch. Thanks to the Vogels for the sweet coloring book and colored pencils, etc. Thanks to everyone for the cards and heart felt messages. Mom and Dad, I couldn't do all of this without you, your love and support has always been appreciated! Kim, thanks for being an awesome mother-in-law, your love and support is always felt and your caring and dedication is second to none. Final thanks to all of my friends (Radloff, Cartonia, Hino, Olsen, Mucica and Szczesek) for everything you have done!
Jenn's address here is:
Jennifer Pyjas
Roswell Park Cancer Institute
Elm and Carlton St. Room 5409 West
Buffalo, NY 14263
Much love from room 5409!!
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