Good morning family and friends,
Jenn is rather weak from the chemo she received leading up to last weeks transplant. She is taking a day off today from PT, OT and all the likes. She had a crazy day yesterday as her heart rate was high and her blood pressure was really low. So the cardiologist came in and saw Jenn, he said he really wasn't overly concerned and that she just needs a "tune-up", but that always worries me. Jenn has been maintaining her good spirits, but she still has times were she gets really worried and cries some as well. Which is good for her, she needs to get those sad feelings out in order to stay strong and fight through this bone marrow transplant.
I will try to update the blog a little more frequently as I am not traveling this upcoming week, so keep an eye out for more frequent updates.
I want to thank a bunch of people today that have either sent cards, gifts, etc. Thanks to the folks at Synnex for sending a really nice card that was signed by all of our friends at Synnex and had some really motivation words of well wishes and healing. Jenn really loved reading all of the comments, they brought many smiles to Jenn's face. Speaking of smiles, we received the absolute nicest card this past week from Jenn's Aunt and Uncle; Jane and Scott. I want to thank them many, many, many times over for the amazing card and especially for what was contained inside. That made Jenn feel so relieved as she always worries about finances and that certainly made a lot of those fears go away. You guys are amazing and we couldn't share our anniversary with any finer a couple!! Thanks to Kim (Jenn's Mom) for sending some really cool Halloween decorations, seasons of Breaking Bad and funny materials that had Jenn and I laughing (The hat is hysterical!!). That made Jenn spruce up this morning and I in turn spruced up her room with all of the decorations; Thanks Mom! Thanks to all of the people at Wells Fargo that work with Scott (Jenn's Dad), they sent some really nice gifts that Jenn will be using as soon as we get out of here. Also the stress ball and pens were great, she has been pumping that stress ball for the past 30-45 minutes and that is helping with her strength as well. Thanks Monica and everyone at Wells Fargo! Lastly thank you to my grandmother for the anniversary card, it was beautiful and made Jenn smile at the kind words and loving birds on the cover, she really enjoyed reading it and taking it in!
Please say some prayers for this spirited warrior, she has been through hell and back so many times that I already lost count at a couple hundred... She is strong and a fighter, but prayers are always needed and we thank you all for keeping Jenn in your thoughts and daily prayers!
Much love from room 5617!!
Saturday, October 12, 2013
Saturday, October 5, 2013
Saturday October 5th, 2013
Happy Birthday to Jenn, Happy Birthday to Jenn!!
Jenn received her T-cells to from her lovely donor (Whomever you are...we will find out who you are a year from today and we appreciate all that you did for my wife!!) and all is well. The transplant takes less than 20 minutes, but that little bag of cells are the most important transfusion Jenn will ever receive in her life!!
This past week has been rough on Jenn emotionally, so her coordinator here at Roswell setup a visitation from Larry, a former bone marrow transplant patient here at Roswell. Larry was quite inspirational as he too has been through two bone marrow transplants and had just about every complication you can think of. He wasn't supposed to make it out of transplant, but told us that he just focused on what mattered most to him; his wife and family. He told Jenn that she needs to stay here for me and for her family and I couldn't agree more. She has so much to live for and that was immediately clear!
Jenn is doing much better with her speech and walking as well. This past week she even walked 20 laps one day and most other days she would pound out 12-15 laps. If you consider that less then 2 weeks ago, Jenn was barely able to walk 1 lap, her progress is quite remarkable! Now with that said, Jenn is still emotionally quite low, so if anyone would like to send a card for encouragement it would be greatly appreciated. Please send cards to the following address below.
Jenn Pyjas
372 Lake Ave
Lancaster, NY 14086
I want to let everyone know that even though all is well so far, the serious battle has yet to begin. The next two to three weeks will be rougher as the chemo sets in and the donors marrow starts to graft. We just need to send prayers that the marrow grafts and that there is not to much graft versus host disease (GVHD).
Lastly, I want to thank Kim Lomas (Jenn's Mom) for visiting last week, without her here Jenn wouldn't be in the great physical and mental condition that she was when she came into the BMT transplant wing this past week. There certainly is special bond between a mother and her daughter and I got to see that first hand and it was heart warming! Also, I want to thank everyone that I work with at Epson for covering for me this past week at the Synnex National Conference and for the beautiful bouquet of flowers that Jenn received here yesterday. They are absolutely gorgeous and I cannot thank everyone enough!
Much love from room 5617!!
Jenn received her T-cells to from her lovely donor (Whomever you are...we will find out who you are a year from today and we appreciate all that you did for my wife!!) and all is well. The transplant takes less than 20 minutes, but that little bag of cells are the most important transfusion Jenn will ever receive in her life!!
This past week has been rough on Jenn emotionally, so her coordinator here at Roswell setup a visitation from Larry, a former bone marrow transplant patient here at Roswell. Larry was quite inspirational as he too has been through two bone marrow transplants and had just about every complication you can think of. He wasn't supposed to make it out of transplant, but told us that he just focused on what mattered most to him; his wife and family. He told Jenn that she needs to stay here for me and for her family and I couldn't agree more. She has so much to live for and that was immediately clear!
Jenn is doing much better with her speech and walking as well. This past week she even walked 20 laps one day and most other days she would pound out 12-15 laps. If you consider that less then 2 weeks ago, Jenn was barely able to walk 1 lap, her progress is quite remarkable! Now with that said, Jenn is still emotionally quite low, so if anyone would like to send a card for encouragement it would be greatly appreciated. Please send cards to the following address below.
Jenn Pyjas
372 Lake Ave
Lancaster, NY 14086
I want to let everyone know that even though all is well so far, the serious battle has yet to begin. The next two to three weeks will be rougher as the chemo sets in and the donors marrow starts to graft. We just need to send prayers that the marrow grafts and that there is not to much graft versus host disease (GVHD).
Lastly, I want to thank Kim Lomas (Jenn's Mom) for visiting last week, without her here Jenn wouldn't be in the great physical and mental condition that she was when she came into the BMT transplant wing this past week. There certainly is special bond between a mother and her daughter and I got to see that first hand and it was heart warming! Also, I want to thank everyone that I work with at Epson for covering for me this past week at the Synnex National Conference and for the beautiful bouquet of flowers that Jenn received here yesterday. They are absolutely gorgeous and I cannot thank everyone enough!
Much love from room 5617!!
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