Monday July 22nd, 2013

Good afternoon everyone,

Jenn is doing well today, she had to have her central line put back in yesterday as she accidentally snagged it on the hospital bed and slightly ripped it out early Sunday morning.  They have since replaced the line last night and all is well with that.

Jenn is having her best day to date.  She had a pudding this morning with apple juice and now is eating a bagel and cream cheese.  This is the most that Jenn has eaten in 18 days!

We had to shave off all of Jenn's hair today, it was getting nappy and falling out, so it was time to say goodbye to her hair.  While Jenn looks beautiful without hair, it made me very sad to shave it off.  She hadn't had a full set of hair until most recently and I think the reality set in for me that she won't have a full head of hair again for another year or so.

Other than that, we are just waiting to talk to the team of doctors, but I can also tell you that Jenn's fungal lung infection is starting to look a little better than it did last week.  So that is a step in the right direction.  Lastly on the health front, Jenn's liver is starting to work properly again, so her Bilirubin levels are down to 5.  Now we just need those levels to come down to 1.5 or so and she will be back to normal if you will.

I wanted to take a minute to thank everyone here at Roswell Park.  From Dr Wang and Dr Wetzler to the nursing staff that is just simply AMAZING!  All of the nurses have been super nice and supportive so far, Jenn literally hasn't had anyone that she doesn't like and the same cannot be said for when we were at Duke previously.  The staff here is caring, attentive and quite funny.  They all just adore Jenn and the love that she spreads continually.  Jenn has been known to ask the nursing staff how their day is going... even while being as sick as she has been most recently.  But as we all know, Jenn is always looking out for others and their well being.

Well that is it for today from room 5409, we all just need to pray that Jenn recovers from this first round of treatment quickly.  The faster she recovers from this first round, the sooner they will accept her in the bone marrow transplant wing. 

Much love from room 5409!!